Procurement of the PEGASUS Evaluation
Wednesday, 28 January 2009

Following years of lobbying by health care professionals and the voluntary sector culminating in the ministerial commitment in the NHS Plan (2000) to improve the provision of screening services, the Sickle Cell & Thalassaemia Programme was set up in 2001 to deliver the following linked programmes:

  • The newborn sickle cell screening programme; to achieve the lowest possible childhood mortality and morbidity rates from sickle cell disease by offering screening in the newborn period.
  • The antenatal Sickle Cell & Thalassaemia screening programme: to offer effective and appropriate sickle cell, thalassaemia  and other haemoglobin variants to all eligible women and couples in a timely manner in pregnancy.

The NHS Sickle Cell and Thalassaemia Screening Programme now wish to commission a formative evaluation of the PEGASUS Programme to help inform and direct the SCT programmes' education and training strategy over the next five years and to help share good practice and learning with other NHS services facing similar issues in implementation.  

Please be informed that the procurement for the Evaluation of the PEGASUS Network has started, the brief including details on how to submit a proposal can be found on the following website: